eva and 65 roses

September 9, 2012 at 11:30 am 11 comments

originally posted apr 29, 2010, updated sep 9, 2012


65 red roses photo

we blog therefore we are. a blog is the modern version of emily dickinson’s letter to the world. to some of us, it has become a medium for expressing the other part of us. it’s the private one that we keep away from family and friends for fear of being misunderstood. through our blog, we write our thoughts like a prisoner tapping the wall hoping that there’s someone else on the other side. oftentimes, our words are met with silence. but sometimes, we find a connection. somebody reads our post, then another, and another, until the chain grows and achieves a life of its own.

eva dien brine marvoort (1984-2010) was in the advance stage of cystic fibrosis when she started her blog in 2006. she named it 65 red roses after ’65 roses’ which is how children who have the disease are taught to say it because the words are much easier for them to pronounce.

she used her blog as a platform for spreading awareness for cystic fibrosis. it’s an incurable and hereditary disease that causes the exocrine glands to operate abnormally by plugging the body’s ducts and passageways with thick mucus. in many instances, this leads to serious breathing and digestive problems.

in 2007 she underwent a double-lung transplant. two years after having the procedure, however, her body started to reject the new lungs. she died on march 27, 2010 while waiting for a new set of lungs. had she lived a few days more, she would have been 26 years old.

she didn’t mince words in documenting how it was like to deal with the disease on a daily basis. she told it like it was. the high and the low. the emotional up and down. the momentary thrill of victory and the shattering agony of defeat. in the process, she had made a difference in the lives of thousands of her readers. she had become a voice to fellow cystic fibrosis sufferers all over the world. to the rest, she had shown how to live for the moment and how to appreciate the little things that we oftentimes take for granted.


a documentary showcasing her life’s story and the friendships that she made on the internet has been released on dvd with good reviews. it was directed by philip lyall and nimisha mukerji and produced by force four entertainment, in association with dualogue productions and cbc newsworld. it officially became available in the u.s. on jun 19, 2012.

“this is my letter to the world, that never wrote to me,” emily dickinson once rued. in eva’s case, the world wrote back a thousand fold.

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Entry filed under: Blogroll, commentary, internet, sick. Tags: , , , , , , , .

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11 Comments Add your own

  • 1. sub  |  April 29, 2010 at 5:27 pm

    ahhhhh…this made me cry. i have yet to read her blog.

    yes its true, we blog because we ought to release some of our thoughts and sentiments without the fear of being misunderstood. as for my case, that was the real intention. but when i noticed a couple of people following my blog, i was once again on the careful side of writing. i honestly thought of disenabling my comment section, then again i thought these people isn’t to blame for whatever im experiencing/thinking/doing. they are just commenting, like you. so im still trying to win the battle in a more mature way that whatever i do/think and whoever i am, people may or may not like me for that but that doesnt NEED to affect my life, diba? that’s why i name my site subterfuge.

    Reply
    • 2. plaridel  |  April 30, 2010 at 9:27 am

      subterfuge:

      you can’t control what people will say, but you can turn on the option to have all comments screened by you first before they show up in your blog. maybe that’s what you should do if you get a lot of spam and comments deemed unfit for the general audience. 🙂

      Reply
      • 3. sub  |  April 30, 2010 at 11:01 pm

        lol, ill leave it that way. at least i know other people’s POV without being biased. she’s really inspiring.

        Reply
  • 4. j3ntan  |  April 29, 2010 at 8:50 pm

    yeah she’s AMAZING 🙂

    Reply
    • 5. plaridel  |  April 30, 2010 at 9:42 am

      j3ntan:

      she was amazing, indeed. for one thing, she showed us how blogging can be used in a very positive way.

      Reply
  • 6. sarah grutas  |  May 5, 2010 at 9:14 pm

    wow. this is an inspiring story.

    Reply
    • 7. plaridel  |  May 6, 2010 at 12:27 pm

      sarah:

      what a life! she lived it to the fullest. glad to have watched her memorial streamed live from her blog. it was a great and touching send off. she couldn’t have asked for more.

      Reply
  • 8. orville  |  July 2, 2010 at 6:48 pm

    this is definitely a great purpose for blogging. i will try to spend some time reading her blog and explore what’s written on it. if i’m not mistaken, is she the oldest blogger ever lived? 65 red roses amazes me, at first i was thinking of it as a love related post but then when i read it.. it is love… on a different way.

    Reply
    • 9. plaridel  |  July 2, 2010 at 10:05 pm

      orville:

      eva was only 25 when she died. since cystic fibrosis sounds like 65 red roses, that’s how children with the disease are taught to pronounce it.

      Reply

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